Some would say why bother writing a letter to Boo, he isn’t going to read it and if he does he won’t understand. I say, I was told this boy wouldn’t do any of the things he has achieved, who knows what the future holds. And if he is 40 when he reads this letter, then I am cool with that. And if he never reaches the point where he can truly understand it, cool again. As my Moo says….. its all good.
My Boo,
My booful boy. My precious little man.
My forever baby.
Oh, how we wanted you. For years Daddy and I tried for you with many losses along the way. But, although hard, they were necessary for us to have such a wonderful little man at the right time. When you were born we were ready. Your sisters were ready. We were all ready for the lessons you would soon teach us. Patience, strength, persistence, courage and pure love.
I remember when you were born. Such a calm birth compared to your sisters. The doctor handed you to me and I held you. Something I didn’t get to do with the girls, I was too sick. In recovery I fed you straight away. You stared deep into my eyes and I wept. The connection was there from the first few minutes.
I remember our first morning together. Daddy had to go to work and I was still in the hospital. We were so lucky to be in a hospital where the Daddies got to stay. We had our own room and a queen sized bed. The three of us together. I had the radio on to listen to Daddy and so you could hear his voice.
‘Don’t want to miss a thing’ by Aerosmith came on. I know it is a love song, but the words fit perfectly to how I felt about you. I could not stop staring into your perfect little face. To this day that song makes me cry. Happy tears.
Then you turned blue. Three times you had to stop breathing before the nurses would take me seriously. Then all hell broke loose. We lost our cocoon and you were transferred to the special needs nursery. How ironic.
For 18 months you had a breathing monitor attached to your body. Affectionately coined the ‘ticker’ it made a ‘mysterious ticking noise’ whenever you took a breath. If it was dislodged or you stopped breathing a deafening alarm would go off. It didn’t need to. I was so attuned to the ticking I knew before it went off.
Just after we graduated from the ticker you were diagnosed with Autism. My little genius boy, who was reading and writing already just choosing not to speak was…….. different.
We developed our own little language in sign.
I love you.
Want more.
Cuddle
And my favourite. You are my sunshine.
We would sing it together all the time. In the car, on walks, in the park, at the supermarket. In voice and in sign. Your eyes would light up when I would sing and you would grab my hands to make me sign it too.
You are my sunshine
My only sunshine
You make me happy
When skies are grey
You will never know, dear
How much I love you
Please don’t take my sunshine away….
Boo, you are my sunshine. I might complain about sleeplessness and destruction, but as I sit here, in the pre-dawn of your 9th birthday, with you laying next to me – Daddy relegated to your bed as is quite often the case – I gaze at you and realise how lucky I am.
Nothing comes easy in your life. You are constantly bombarded by sounds, images, smells that distract or distress you. Yet you have come so far. Much further than anyone ever hoped for. You are a true miracle. A lesson in determination. And in pure innocent joy.
Whenever I need to remember, I just have to watch you eat an apple, play on the computer, hear a new song or give you a tickle or cuddle. Pure Innocent Joy.
My forever baby, we are one.
Love Mummy.
xxxx
P.S. I hope you like your presents. They are not what your asked for but firstly, you are not old enough to drive a taxi. Secondly, Streets icecream won’t let me have one of their freezers unless we own a store. And lastly, I have tried to get you are real movie clapperboard but Mr. Speilberg won’t return my calls. But I am on it. This is the one, right?


October 28, 2007
No blood, no tears, little bit o’ bitchin’
Posted by magneto bold too under Autism, Stuff about Boo, comments from the Dude, funstuff, kids | Tags: Autism, birthday, Boo, family, love, sleep |[8] Comments
The party is over.
One more to go, but six days to recover.
Boo had a wonderful time. The kids were well behaved. A couple I wanted to strangle. A couple I want to adopt. 10 kids didn’t show, 6 had tummy bugs and their parents called to apologise -WOW - one mum went as far as popping over before the party to say J wasn’t coming but here is Boo’s present anyway……. How cool is that!
27 kids. 5 surly teenagers until the 6 month old baby came, then marshmallows in Emo garb. 4 adults. 3 conversations with the ‘ferals’ – one of them is growing a freaking BEARD! So I asked her how she liked my t-shirt. Bwaaaa haaa haaa!
Everyone but T had a good time. T is a tiny little dynamo, blindingly street smart with amazing blue eyes. She drives me nuts sometimes she is so freaking adult, but I love the kid. She was having a good time until I had to tell her off. She was on the trampoline with a boy and beating the living shit out of him.
It was a fun wrestling game that quickly got out of hand after she had eaten her body weight in unicorn turds (aka mini meringues). She was physically picking him up and body slamming him down. The boy (also T) was trying to save face cause T is half his size. But enough was enough. I ended up having to scream at T to get off him.
He’s all like ‘It didn’t hurt’, ‘I’m OK’, ‘I let her do it’ (so brave for a 7 year old) limping into the house trying to hide his tears. I sat T down and told her that she really shouldn’t do that cause she could get hurt one day when someone fights back.
‘Don’t worry Kelley, I can take care of myself’
Damn right she can. She scares me!
So T spent the rest of the party sulking. Refusing cake, icypoles and further turns on the trampoline. She sat out the potions class and pretended to be unimpressed with the teens ‘exploding’ experiments. Oh, it was so wife-pissed-off-at-husband-get-back-by-punishing-myself, I was stunned. And amused.
Boo got some amazingly thoughtful gifts, adorable cards (lots of ‘you are a good friend’, ‘I love you’, ‘we are best friends’ handwritten cards *sob*) and some what-the-fuck presents.
The 2 blocks of DAIRY MILK chocolate from the woman I was lamenting having to do everything dairy free to and she gave me a fucking RECIPE. WTF?
This make your own animation thingy that plugs into the TV…. oooh it is so cool! AMAZING!
A dirty ball. You could have fucking washed it first before re-gifting dickhead. WTF
The mum that called from out the front to ask what to buy Boo….. I told her $5 in a card is perfect. She walked in the door 1 minute later, $10 in a generic card……. LMAO
Tons of artist supplies. Pens, paper, paints, sketch pads, textas, crayons, artist canvas, coloured pencils, charcoal….. Boo will be set for at least a month
BRILLIANT
The weather was perfect. A little warm but the rain held off. Thank you everyone for doing those little anti rain dances for me.
After everyone had gone and Boo had enough time to decompress, he came to me.
‘You know what Mummy?’
‘What my Boo?’
‘It was a great party’
‘Yes it was precious. Did you have a good time’
‘I did. Fun was had by all’
Yes, indeed. Everything was so worth it just to have that conversation with my Boo.
You rock Boo. Now it is 10.30pm, get the fuck to sleep.
***************
I will update the party blog with more details and photos over the next couple of days. Right now I have a hot date with a huge glass of red and a footspa.